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01 June 2011

ACPGBI to launch Pelvic Floor Registry

Dendrite Clinical Systems, in conjunction with the Association of Coloproctology of Great Britain and Ireland (ACPGBI), has revealed that in October 2011, the Association will launch a Pelvic Floor Registry. This registry is the latest in a series of web-based registries the Association has developed in collaboration with Dendrite Clinical Systems.

“The Pelvic Floor Registry has been established to collect evidence to show that patients" outcomes are improved by whatever form of treatment or intervention they receive for their pelvic floor disorder,” explained the Association"s Honorary Secretary, Karen Nugent. “So they could be presenting with constipation or incontinence etc. and the registry will record their condition and the treatment they receive, whether it is medical treatment, physiotherapy or surgery.”

The aim is to get a picture of how pelvic floor conditions are treated and what the outcomes are. According to Nugent this will be the first national database that will allow ACPGBI members to submit their own data for no cost, whilst allowing them to combine and compare their data with colleagues. There are individual databases recording data, however, this is the first ACPGBI registry.

“Some of the other databases are quite complicated in terms of the amount of data they collect. We have tried to make this database simplistic as possible. I may have 10-12 pelvic floor patients a week, so to record that amount of data would be quite time consuming,” she said. “One of the drivers behind this is the choice of treatments. I am quite conservative in my approach, whereas generally, surgeons like to operate. So what we would like to know is whether the surgical procedures result in better outcomes or would the patients have the same outcome by taking a tablet.”

The registry itself is comprised of two layers: a patient reported outcome for measuring outcomes with different treatments, and forms to score patients symptoms and quality of life.

The returns for surgical procedures will be reconciled with national data obtained from the NHS patient records to enable verification of data to reflect as far as possible the true national activity, then patient outcomes for any intervention can be recorded over time.

Registration

The web-based registry (powered by Dendrite Clinical Systems) will be ready to begin collecting data by October 2011 and ACPBGI members can register their details online. They will then be provided with a unique password to access and enter information into this intuitive database. The database is designed to allow each member immediate access to data that they have entered, and to obtain specific reports in real time (e.g. demographics and outcomes) for their own records and practices. Each member will be able to download their data and obtain reminders for pending follow-ups of their patients.

The Registry can be accessed using a standards web browser, allowing registrants to enter data without the need to install additional software or perform any complex system configurations. This web-based system allows the individual clinician to enter patient information onto a database whether at in hospital from an office-based practice or even at home.

Features of the Pelvic Floor Registry include:

-A web-based system with secure username and password access.

-The registry is easy to use; it employs standard check-boxes, radio-buttons and drop-down lists, which make for rapid data entry.

-Intuitive data capture with on line data validation.

-A “Download Document” option that allows users to download pdf. copies of the dataset questions, training manuals and other useful information.

Report

The aim is to publish a series of annual outcomes reports, once the registry has collected a sufficient number of records and has complete datasets. The reports will be made freely available to all members who contribute data.

“We hope to publish the first data 18 months to two years after the launch of the registry to ensure we can get follow-up data on to the registry,” said Nugent. “I would encourage all members to enter their data onto the registry, as we require evidence that proves to ourselves, patients and the outside world that we are as individuals and as a profession, are improving patient outcomes.”

If you or a colleague/s are interested in registering, please email registrationsupport@e-dendrite.com or phone +44 (0)1491 411 288.